Latest News

Welsh Rare Disease Day Events 2024

Welsh Rare Disease Day Reception 2024

Genetic Alliance UK’s annual reception is returning to Cardiff Bay again and we look forward to seeing many of you in person to celebrate Rare Disease Day and raise awareness with the wider rare disease community. Since the event was such a success last year, we are returning to the Norwegian Church, Cardiff Bay. We will have a number of exhibition stands and light refreshments as well as lots of great speakers so please do come along!

Please also write to your Senedd Member and encourage them to join us at the event to learn more about the impact of rare diseases and how they can best support you.  Please do share the invitation with others who may have an interest in attending and register here: Rare Disease Day 2024 Wales Reception Tickets, Tue 20 Feb 2024 at 18:00 | Eventbrite

When: Tuesday 20 February, 6-8pm

Where: Norwegian Church, Cardiff Bay

Sign up here: Rare Disease Day 2024 Wales Reception Tickets, Tue 20 Feb 2024 at 18:00 | Eventbrite

Virtual Reception – 4th March, 2-4pm

There is also a virtual event for those who cannot attend in person, bringing updates from across the UK. 

Please sign up for the online event taking place on 4 March, 2-4pm: Rare Disease Day 2024 Joint Nation Online Event Tickets, Mon 4 Mar 2024 at 14:00 | Eventbrite

Please keep up to date with information about Rare Disease Day activities at Genetic Alliance UK by following them on social media using the information below: X:  Genetic Alliance UK (@GeneticAll_UK) / X (

For more information, you can also contact the Genetic Alliance UK Policy & Engagement Manager (Wales), Emma Hughes –

We look forward to seeing you at one of the events!