Virtual Welsh Rare Disease Patient Network Annual meeting 2023: 29 November 10-2pm via Zoom: book now!

Virtual Welsh Rare Disease Patient Network: Annual meeting 2023
29 November 10.00 – 14.00 via Zoom
FREE to attend for anyone with an interest in rare diseases – join for the whole event or drop in for talks that interest you!

This years Meeting Programme
10.00 – 10.10 Welcome and Introduction, Emma Hughes, Genetic Alliance UK/ Wales Gene Park
10.10 – 10.30 ‘Thoughts Into Action’ report – Kirsty Hoyle, Metabolic Support UK
10.30 – 10.50 Rare Conditions: Stories Behind the Stats! Matthew Hamer, Genetic Alliance UK
10.50 – 11.00 Break
11.00 – 11.20 Rare Minds Matter – Mental health & rare conditions – Lauren Roberts, Rare Minds (Mental Health)
11.20 – 11.50 The UK’s first SWAN Clinic and establishing the Global Rare Disease Nurse Network – Zoe Morrison, Welsh SWAN Clinic
11.50 – 12.30 Lunch break
12.30 – 1.30 WORKSHOP – Refreshing the Welsh Rare Disease Action Plan – Rhiannon Edwards, Rare Disease Implementation Group
13.30 – 13.50 Current rare disease research opportunities
13.50 – 14.00 Wrap up and finish

Register for this event here