Rare Disease Research Gateway
Learn about research projects for patients in Wales and how you can become involved in helping research.
Information and Support
Information and support for those affected by rare, genetic and undiagnosed conditions.
Our Policy Work
Learn how we’re influencing and driving policy work into rare and genetic conditions to benefit patients and the public.
Rare Disease Patient Network
Join our Rare Disease Patient Network to keep connected with advances in genomics and rare conditions that will benefit patients in Wales and beyond.
Public Genetics Network
Join our Public Genetics Network to receive updates, news and information about genetics and genomics.
Get Involved!
Find out how you can get involved with research into genetics, genomics and rare conditions in Wales and beyond.
Events for Patients and Families
Learn about the types of events we hold to inform and support patients and families and how you can get involved.
Events for the Public
We run regular events to engage with the public about current topics in genetics and genomics.
